Patiently Waiting | Endo Update
5 months ago - LEAVE A COMMENT
It’s been 3 months since my surgery. I have had so many of y’all support me during this time and ask how I’ve been doing. My recovery from the surgery itself went well and within a few days of surgery, I felt pretty good. I needed at least 2 weeks of rest, but after the first week, I started feeling back to normal. I still had a lot of endometriosis symptoms, but I was told that it can take weeks for you to know if the surgery was successful.
I wish I had a better update, but as of now, I haven’t seen much improvement in my pain. I called my doctor and even had a followup appointment three weeks ago to see him because I have a lot of pain still. He’s not entirely sure why I’m still in pain. He said right after my surgery that there is a chance that in addition to the endometriosis that I have adenomyosis, but the only official way to diagnose adenomyosis is to have a hysterectomy and diagnose it by looking at the removed uterus. Much like endometriosis, the adhesions and tissue build up, but this time, it’s inside the uterus instead of outside (like with endo). Many women who have endo also have adeno, but it’s a smaller percentage. He could go in with another surgery and cut the nerve from my uterus which could possibly help with the ovarian pain I experience, but it’s not a guarantee.
The good news is that I haven’t had a flareup since my surgery and I haven’t had any days where I am in so much pain that I cannot get out of bed. I just live in pain daily. Some days are with minimal pain where I notice the pain, but it’s minor enough that I can go and do a 5 mile hike (like Josh and I did last week). Some days, like some days last week, are bad enough that I am in constant pain and have to take a pain pill to help take the edge off, but despite living in this constant pain, I am blessed that I can still function and take care of the kids and do my photography job. I just have to push through the pain some days more than others.
There’s still a chance that my body needs more time to heal and I’ll find relief in the coming months, but my doctor seems to think that there is something else going on that is causing my pain. He wants to put me on birth control again to see if suppressing my hormones takes away my ovarian and back pain. It didn’t work earlier in the year before my surgery, so I don’t think it will this time around. Plus, I really don’t want to go back on birth control. I only did it last year for a couple of months to see if it would help before I had surgery. A big reason in why I had the surgery was to keep from having to be on birth control again. So I don’t know. Still going back and forth about it.
I wanted to say thank you to all of you who helped bring meals during my recovery and for everyone’s super kind words, emails, text messages, and so many of y’all following up on me. If I have anything more to update later, I most definitely will!